End of an era

Using the patented Mavis Beacon "Hunt&Peck" Technique, Lady Nina

Yes, yes, Dan is very not well. Now what was your point?

(and there's no need to call him 'it' either, that's just rude.)

 

It's all sorted now, and has been since we heard we had to watch for them.
The problem is that apparently, when you're normal and able-bodied you move
your legs 180 times in a night or something, even just little bits is enough
to move the pressure point and let the blood get back there. Obviously,
when your legs don't work at all, like mine, they don't move at all, so the
pressure point never changes, and blood never manages to get back there,
hence you can get pressure sores.

I went to the local Hospice after 2 weeks, just for a week to learn how to
do things, and see what equipment would be helpful at home - big thanks to
my Occupational Therapist for getting all that sorted in less than an hour
somehow, so we arrived home and it was all there, with my auntie who'd
kindly sat in and waited for the deliverys. But they couldn't beleive the
GP never mentioned anything. Also, she had a rather irritating, almost like
it was a nervous thing, habit of saying something really bad then doing a
small, fat bird laugh "Muha" and smiling. Then she came along with this
steroid injection my consultant at the Hospice had asked her to give me, so,
she used two needles and failed in hit any veins in her three attempts (yea,
one went in twice) so she had to come back the next day - but it was ok she
said, because she had a much bigger needle that didn't have to get into a
vein, it could just go in my arm.

Shortly after, I switched GPs, as I just couldn't talk to her. It didn't
help that my room was up two flights of stairs, and she was all of 30 stone.
So she got up there, plonked on the corner of my bed almost
hyperventilating. Took her at least 5-10 mins before she could talk
properly, and she was still sweating and panting slightly when she left.
Also, she once pronounced someone dead, that wasn't dead... Since I got ill
some 13 years ago, she's never been to visit to see how we are or anything -
new GP comes once a week, said he wouldn't dream of any less, and did
suggest twice a week, just to check up on me, although I have moved to the
ground floor now

We already had a electric bed delivered, but we've got an air mattress now
(again, thanks to the OT) as one night on my side, having not slept on my
side for weeks, gave me a pressure sore. The mattress was soft foam
apparently, but my normal MemoryFoam mattress upstairs went two weeks with
no damage, it was all done on that foam mattress, and the Hospice staff not
letting me get out of bed on the first day there, seen as I hadn't been
assessed by the physio as she came and said she wanted to show me some
exercise techniques, so I asked if she could come back the next day and I'd
make sure mum was there to watch too, as she'd be helping me. She said yea,
that was fine, but apparently she was also there to assess me for the hoist
and things, and till she did, I couldn't get out - they just neglected to
mention this too me at the time as obviously, I'd have let her so I wasn't
stuck in bed. But anyway, s'all in the past now

Anyway, that was a bit of a random rant, but it's just so irritating that
we're still paying for the GP not telling us what might happen. Ok, you
could certainly say we should of guessed, but I've been laid up for weeks
before and never had a problem, although I suppose I'd still have been
moving in the night then, having learnt that 180 movements thing, as it was
surgery and sickness mainly. We also had a lot more going on at the time,
certainly my mind wasn't very clear the few days after I lost the use of my
legs, and I could clearly see that mum wasn't taking it very well either of
course. They told us at the Hospice that the first thing the GP should have
told us to do was to keep turning/rolling/lifting and watch out for any
pressure sores forming.

Now we have the fun of daily dressing changes, a situation where the doc was
considering a maggot dressing (I wasn't too enthusiastic) but thankfully it
healed very well anyway, and also the new experience for both me and mum of
dealing with rotten flesh, and then, holding rotten flesh when it fell off.
I cannot describe how unpleasant that was, in smell, looks, feel and mainly
in the fact it had just come off me...

 

FFS.

Totally uncalled for.

 

Aye - women hugging each other and all that, no need.

Oh... you mean the other bit above which I've now snipped?

I quite agree - LN, ever considered removing your insensitive hob nailed
boot from your gob before posting?

No offence, like... but whilst some people might do admirably with coping
with the shit hand they've been dealt with in life, I suspect they do it all
the better for not having their noses rubbed in it, by design or, as I
suspect in this particular incidence, otherwise.

--
JackH

98 Honda VFR800FiW
05 Sachs Madass
03 VW Passat TDI Sport
89 Vauxhall Nova 1.3 Pearl

 

I'm lost, what did she do? Or what did she think she was doing?

 

His dad drove him up, and he was a right know-it-all-full-of-shit-twat, why
would you pretend to know a lot about something, when you really don't, then
try and use your 'knowledge' to make small talk - with someone who actually
knows what they're talking about? He seemed to think he knew all about the
Clio, you know, the car I owned, and took to the Nurburgring so knew
reasonably well... It was only the fact that I had to be polite that stopped
me telling him to STFU heh. I left my Nurburgring sticker on too, I hope
that lad doesn't go round telling people it was him that took it there...
And he was Welsh ffs, from Swansea, so I couldn't tell what he was saying
half the time. Thankfully the kid spoke a language closer to English, so I
was able to decifer him.

I only spoke to them for a minute or two whilst things were signed, poor mum
had to take the lad all the way to Beverley to the DVLA office to change the
tax class from disabled to normal, an she said his face was permanently
covered in a huge grin, and he was so excited he was like a small child on
Xmas morning about to get his presents. Also, he kept saying "Wow, my
parents don't drive like this! I don't know anyones parents that go this
fast..." and then on arrival his dad came over and said "You weren't
wasting any time on the way here were you?". She couldn't understand all
this as she told me when she got home, apparently she never went over 70 an
overtook a tractor an a campervan, and if I'd of been there I'd have been
telling her to hurry up! So at least I know it's gone to someone who'll
hopefully, not drive it too quickly and stack it straight away and who'll
look after it - he's paying to have it detailed already, something which, he
knew, I did to it myself with all the pukka kit twice in the two months I
used it for. Although it wasn't all torture for mum, as she was able to meet
the Doblo guy there and sort that out, as dad met them there too with the
Arosa. So that was all sorted too, an where she hated driving the Arosa
(50bhp...) she quite likes the high position of the Doblo, and it's a TD so
whilst it's not fast, it's nice and torquey so it feels a lot quicker than
it is.

Of course

 

Good man.

--
JackH

98 Honda VFR800FiW
05 Sachs Madass
03 VW Passat TDI Sport
89 Vauxhall Nova 1.3 Pearl

 

Have you considered a spit-roast?[1]

That had me tittering like a loon. Sorry...

[1] Which has to be quite high on the list of things I thought I'd
never say to a bloke.

--
Krusty
www.MuddyStuff.co.uk
Off-Road Classifieds

'02 MV Senna '03 Tiger 955i '96 Tiger '79 Fantic Hiro 250

 

Ummm... I only know the dirty meaning of that so I'm not quite sure where
this is going...

Do you mean holding me up an each end to stop the sore bits touching down?
When I sit in my chair, I sit on a pair of rubber rings, a little one with a
bigger one on top, and a sheet over the whole chair to make it all stay put
(and so I don't look like a loony). Works 100% perfect, I keep lifting with
my arms on the chair arms just so I make sure any pressure points on my
thighs etc get the blood bad and things, and the nurse said she's never seen
a big sore, that had a dead bit, heal even nearly as fast as mine has, so
we're doing something right.

Apparently it has a lot to do with your diet as well, how fast you heal I
mean, and whilst I do have a complete lack of appetite, I do find I can eat
quite a bit of fruit without it making me feel unwell so I'm thinking that
must be helping cos, like, fruits good for you isn't it? The government
says so, as long as I get my 5 a day, I'll live forever

I don't think that's unreasonable...

 

Nope. If I offend Dan I'll apologise but I think he's more than
capable of dealing with someone being matter of fact about death.

I think it would be more offensive to treat someone differently, to
tip toe around, to spout platitudes, to ignore reality. I appreciate
that this seems to be an uncommon attitude to death and dying in the
UK. With families scattered, improvements in health care and a change
in culture we don't have a set of 'what to do' mores.

As I said if I've offended Dan I'm really sorry.

Still doesn't excuse him from perpetuating the use of 'Well' instead
of 'Very' or 'extremely' or 'amazingly' or any of the other useful
words that convey far more than 'well'.

I mean it about giving his mum a hug though. he's only a few years
older than my son, his mum and him have been dealing with this for
years and they both have been in my thoughts a lot since his condition
got worse.

 

I wasn't offended, cos I wasn't totally sure I'd understood it right, and
also seen as you'd be quite nice whilst making strange jokes to me before, I
knew if it was offensive that you didn't mean me to read it that way.

As for the discussing it/tip toeing etc, I'd rather just not talk about it
at all really heh, although I know in discussions like this it'll always
come up, I mean I don't enjoy those long drawn out talks specifically about
dying, or feelings and stuff cos like, they're just depressing

Point noted about the grammar as well, I used to be pretty good with it, but
I tend to be a bit faster and less careful these days. It's a Usenet post,
not a GCSE English exam, so I won't ever use 'txt spk' [1] and usually I get
most of it right, or at least, pretty close heh.


[1] Ho-ho-ho!

 

Yes, but without the use of penises. Ok dumb idea - but it does seem
like a bed made of foam rollers that slowly move you back & forth
across the bed could work. Like that surfing machine on Gadget Show,
but a bit smaller, a lot quieter, & with fewer surfers.


--
Krusty
www.MuddyStuff.co.uk
Off-Road Classifieds

'02 MV Senna '03 Tiger 955i '96 Tiger '79 Fantic Hiro 250

 

<SNIP yet more of the same, ffs>

You're really are quite, quite ignorant, aren't you?

Polite suggestion: Try considering that not everyone might deal with certain
things of a sensitive nature in the same way as yourself, and so it's
probably best to err on the side of caution and not broach the subject
unless the person concerned has, and appears to want to discuss it, rather
than going in with the full two footed challenge as your starter for ten and
then back off if they then object.

Not rocket science really, is it?

--
JackH

98 Honda VFR800FiW
05 Sachs Madass
03 VW Passat TDI Sport
89 Vauxhall Nova 1.3 Pearl

 

Hmmm, I must say, I can stomach farts, but the smell of rotten flesh, pretty
big bit, maybe 6" x 3" by the time it had been shrunk from the special gel
on the dressing gauze, was something I really didn't like heh. Although I'm
sure smelling someone elses would've been even worse come to think of it...
Did you have the special dressings with silver and charcoal in them that
stopped the smell coming out? They were a godsend when we first put one of
those on, as it was just so lovely not to sit there thinking "Everyone can
smell me... Because I'm rotting..." with 4 scented candles burning close by.

As for 'minging things to hold' it, your own rotten flesh I mean, must come
quite high on the list. It was really slimey, and like skin, but softer and
spongier than normal, and when you pressed on it, it oozed some like, stuff,
that was also really slimey... And then there's the stench from it being
right in front of my face... <shudder> I started having flashbacks there.
It was a bit weird though as it still kind've felt like skin, the texture
maybe, but it was really really spongey. I'm happy the chemicals sorted it,
and the all natural maggot dressing didn't end up being the way forward.
I'm not 100% certain I could knowingly have maggots inside me, as they'd
have gone under the black, dead skin, and then eaten their way out from the
inside apparently. Also, the nurse told me that it would be 'quite a few'
maggots if it ended up being necesary, which thankfully it didn't.

PCT? We're getting all the help we need right now, mum changes my dressings
each day (not all, just the ones that need doing) and the nurse comes once a
week to check on the progress of all the wounds and things - she could come
more often, even every day to do the dressings, but we prefer this way as it
means it's all our timetable (except wednesdays) so we just do things when
we're ready. The GP pops in once a week, he offered twice and also will
come if we phone, but to be fair he just checks I'm ok, gives me any
prescriptions we're out of etc and then leaves. We already knew the GP
personally before he became my GP (Mum and dad know him, and I've met him a
few times at Xmas parties with them/friends in the village, and I even fixed
his daughters laptop before she went back to Uni) and I almost feel like
he's popping in to check on me for his own piece of mind, and because he
knows how much we were messed around before.

 

No. I'm fully aware of what I'm doing.

I'm fully aware of that. However I am not them, all I can do is deal
with things my way.

The subject had been broached.

I was discussing language use.

Am I still posting to UKRM?

"Polite suggestion: Try considering that not everyone might deal with
certain things of a sensitive nature in the same way as yourself"

 

Well, I have an air mattress right now, which does seem to work very well.
It just loads of static tubes of air, and they take it in turns to fill with
air and go hard, and release a lot of air to become very soft. So the ones
holding me up are the full ones, which gradually change to be soft and so
the newly inflated tubes are now the ones holding me up - the idea been this
keeps moving the areas under pressure around, so each bit under pressure
gets a rest whilst another bit gets the pressure and then vice versa. The
problem was with the foam that, even very soft foam, is a bit too hard when
compressed, hence the damage to my hip.

 

If I'm trying to be offensive I usually make it pretty clear

Sorry about that, I did consider not replying to Jack H but felt there
was some thing to be said that's important.

Fair comment.

You're usually spot on. It's just the 'well' thing drives me up the
wall and you're not the only one I've growled at for doing it.

<thwack> U R so not getting away wiv tht either.

 

Really?

Well then it would appear that not only are you ignorant, but that you're
arrogant as well.

*You* aren't the one having to deal with this particular predicament, are
you?

And just to clarify for the apparently hard of thinking, I'm referring to
what the OP is ultimately facing up to rather than your failure to post with
a bit of sensitivity.

When you had issues with your feline friends the other week, *you* chose to
post about it and the pain that you felt, and the quandary over the best way
to break a particular bit of bad news to someone close.

That was *your* choice, as in to open the subject up to the floor, and you
had then had the choice to bitchslap anyone who overstepped any particular
marks relating to it - IIRC, someone else picked this particular baton up
for you when the resident troll posted something rather unsavoury, and which
they then, surprisingly, apologised for.

Whilst certain aspects of the OPs condition have been openly discussed, I
don't believe anyone had broached the particular aspect that you have in
such a direct and insensitive way, although I accept it wasn't the intention
to cause offence or distress.

Regardless, and to draw a close to this, the OP has now stated elsewhere in
this thread that he'd rather not discuss said aspects at all, so if you'd be
so kind as to leave it there, that would be great.

If, as appears to be the feministic way you really feel the need to have the
last word, then email me and take it off group.

TIA

--
JackH

98 Honda VFR800FiW
05 Sachs Madass
03 VW Passat TDI Sport
89 Vauxhall Nova 1.3 Pearl

 

If you win the lottery you might like one of these:-
http://thekneeslider.com/archives/2008/06/19/boss-hoss-advantage-wheelchair-accessible-trike/

Probably not available from motability but a few years ago there was a girl
working in Bristol who had a somewhat simpler trike with a rear ramp.
She just wheelied out of the office, pressed a button to lower the ramp,
wheeled on, pressed a few more buttons, grabbed the apehangers and rode
home.

 

I don't think it's insane; I think it would be impossible to get a
premium below (guesses at a figure) 2k.